Tom & Mary Lou
Finally, we are getting answers to Tom’s health issues that have plagued us for a number of years. PTL there are (6) issues, but (2) of greater importance. First, there is vestibular schwannoma. This is a typically benign brain tumor located on the nerve between the left ear and the brain. A brain MRI is scheduled for Sept. 29th. Second, and most serious, is the diagnosis of amyloidosis. This is a rare disease that is difficult to diagnose. This is a “rogue” protein that attached to any organ or nervous system and causes it to stop working. doctors believe it is type “AL” amyloidosis. There is concern it is in the heart and a heart biopsy is scheduled for July 29th. We meet with the doctor on Aug. 11th to discuss treatment and the future. The disease has no cure. Thank you, Tom and Mary Lou.